Shining Light on Sickle Cell: Awareness, Action & Hope
What is Sickle Cell Disease (SCD)?
Sickle Cell Disease is a genetic blood disorder in which red blood cells, normally round
and flexible, become crescent or “sickle”-shaped. These sickled cells block blood flow,
break apart easily, and can’t carry oxygen efficiently. This leads to chronic pain,
fatigue, infections, organ damage, and in severe cases, life-threatening
complications.
SCD is inherited—meaning both parents must pass on the sickle cell gene. It primarily
affects people of African, Mediterranean, Middle Eastern, and South Asian ancestry.
Why is June 19 Important?
World Sickle Cell Day was established by the United Nations in 2008 to raise awareness
of the condition, encourage early diagnosis, and promote better healthcare access for
affected individuals globally.
Key Facts:
Over 20 million people worldwide
live with SCD.
In India, SCD is highly prevalent
in tribal populations and rural belts, especially in states like Maharashtra, Madhya
Pradesh, Odisha, Chhattisgarh, Gujarat, and Jharkhand.
Early screening, regular care, and
community awareness can dramatically improve quality of life.
Signs & Symptoms:
ASevere pain episodes (pain
crises)
Fatigue and weakness
Swelling in hands and feet
Frequent infections
Delayed growth or puberty in
children
Vision problems
What Can You Do Today?
SGet Educated: Learn how SCD
affects individuals physically and emotionally.
Encourage Screening: Promote
newborn and premarital screening—especially in high-risk areas.
Break the Stigma: Talk openly. SCD
is not contagious.
Support Families: Join or donate
to organizations helping with treatment access, counseling, and education.
Promote Blood Donation: People
with SCD often need regular transfusions. Your donation can save a life.
Hope Through Science:
While there is currently no universal cure, gene therapy and bone marrow transplants
offer new hope. Continued research, access to healthcare, and early intervention are
critical in managing and eventually defeating Sickle Cell Disease.
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